Tuesday, September 17, 2013

Moving On Up

I finally feel like this blog title is appropriate.  We have seen some nice improvements over the last couple of days.  Scott looks stronger and better every day (not quite as sick anymore).  It is so good for his mental state to see some improvements (even if they are small).  The mental aspect of Guillain Barre Syndrome is almost as hard as the physical.  He went from being completely healthy to being completely helpless and on a ventilator in a matter of days.  I can't imagine what that feels like.  The fear of the unknown and fear of not being able to breathe on your own has to be just terrible.
Scott can now move both arms a little bit.  His left arm has more movement, but his right arm is actually stronger.  We have also seen a little bit of wiggling with his legs.  He is also getting really good at talking with the speaking valve.  His voice gets stronger every day.  No more reciting the alphabet.  Thank goodness! They have also started aggressive vent weaning.  We are so excited about this.  It will be a huge step to get Scott off the ventilator.  They will be ale to do so much more therapy with him once he is weaned.
He had a swallow study done earlier today and it went well.  They are going to try a little bit of pureed food with him tomorrow.  Lots of good things happening.  He is starting to experience more nerve pain.      It sounds like that is a common thing with GBS and the pain can get pretty excruciating while the nerves are regenerating.  I am hoping that he will not experience that level of pain.
We are so thankful for all of the prayers, help and support we have received.  We have a very long road ahead of us and wouldn't be able to do it without the help we have received from family and friends.

The kids and I moved into an apartment yesterday and Hannah started preschool today.  I am excited to get a little bit more settled and establish more of a routine.


  1. Hi Katrin,
    This is such great news! You guys have been through so much, we are so thankful to hear that Scott is turning the corner.
    Scott's attitide and strength will shine through in PT. He is such a fighter.
    Please let him know how much I miss him. I think of him all the time.
    I hope he get's to watch his beloved Chiefs tomorrow night.
    Your in our prayers...
    Best wishes and prayers,

    1. Thank you Joe. I know he misses his phone calls with you. He is finally interested in football, which is another good sign!

  2. Katrin my friend! Your strength continues to amaze me and we are celebrating all the answered prayers-big and small-along with you! We are continuing to pray for your family. Can you please text me your new address?

    1. Thank you Hellen. We are so thankful for answered prayers! Love, Katrin