Evan also moved rooms yesterday, which is significant. I wish I did not know this, but they have a system of where they put the sickest kids at the end of the hall and they slowly move up rooms as they get better. The rooms at the end of the halls are bigger for more equipment and procedures they have to perform. Evan has been in the last room of the hallway all week, so moving up one room is good news! Here is another thing I wish I didn't know. Evan was turned around in his bed when he was first moved to the CVICU. That is a sign to the nurses that this baby is really sick, because it means they were ready to do an ECMO procedure (putting him on life support). I am happy to report that he was turned around in is bed this week too. Last Saturday night (when they intubated him and moved him upstairs) all of the nurses received an email about him pretty much saying that they are getting a really sick baby that they don't know will make it, just so they are prepared and can deal with family members. I am writing all this down to prove to you how much of a fighter and a miracle baby he is! He looks like a completely different baby now. He is just so perfect!
Once again I want to thank everybody that has supported us through this journey. I have cried many tears of joy this week, because I am just so overwhelmed with the support. I am hoping one day soon I can thank everybody individually and personally. This has changed my life forever. No parent will ever come close to understanding what we are going through unless you have been in a similar situation. So, I am hoping that one day down the road I can use my experience to help other families in need.
Here is to another mascara day! This has become my motto now and I really like it.
This was Evan in my arms yesterday
Kristin and Casey brought me this bracelet from our house the other day. It is from the Color of Hope gala last year. We have always supported this event and it now has a whole new meaning. I have worn this bracelet 24/7 now and it has given me more strength and of course HOPE.