The dietician crunched thousands of numbers for several hours yesterday to determine what they can feed him. Due to the potential metabolic disease (still waiting on test results) and due to the kidney function he can't have certain fats (metabolic reason) and proteins (kidney reason), which limits his feeds quite a bit. They did come up with a formula last night that they are trying to see how he tolerates it.
I watch the monitors like a hawk when I am sitting next to his bedside. Every time the alarm goes off or one of the machines beeps my heart starts to beat faster. I hear alarms in my dreams now and wake up.
Now for the best part of our entire week. We got to hold Evan last night! This was the first time I have cried tears of happiness. It felt so good to hold my sweet little baby. I did not want to put him back in his bed. It just felt so right to hold him. This is where he belongs. Please pray that Evan will continue to make improvements and that he will continue to surprise the doctors by healing. He truly is a miracle baby and we are so very proud of him.
He looked so much better after removing the breathing tube and they were able to swaddle him for the first time, which he really likes
I am going to put mascara on this morning, because I feel like it is going to be another good day and I will not cry! This is what I have been doing and telling myself over the last few days and it has worked.