It still feels a little surreal to be at home and nothing looks the same to me. We have the best friends in the world. We came home to welcome signs, flowers on the table, our mail delivered to us, a refrigerator full of food and meals brought to us. Thank you so much again. We appreciate it and it means a lot to us.
Evan has been doing well at home and we are starting to experience some of the normal baby issues such as reflux and tummy aches. I am watching him like a hawk and am constantly worried, but overall I am doing better than I thought I would. My biggest worry is that I would miss some of the warning signs of him getting worse again. How do I know that his heart and kidneys are still functioning good enough? How do I know the blood clot is really gone and not a new one has formed? How do I know his blood pressure is still under control? He looks so perfect though and I just have to trust in that. It is going to take a little time to get used to our new normal and hopefully some of my anxiety and paranoia will ease up. I am also a little sleep deprived, which does not make things easier. Our night time schedule is pretty packed. Here is what last night looked like: 11pm medicine, 1am nursing, 2am Hannah woke up and Scott went in to stay with her, 2:30 medicine, 4am nursing, 6am nursing again, 7am medicine and shortly after that Hannah was up for the day. Trust me I am not complaining, I just want to document what my nights look like right now.
Last bottle in the hospital
Packing up our stuff
Getting dressed for the big occasion
Hannah is still loving on him every chance she gets. She has been a wonderful big sister. She likes to hold him, change his diaper and sing to him.
This was Hannah waiting outside of the CVICU the day we left the hospital. She hadn't seen Evan in 3 weeks and was just so excited!
We finally came through the doors with Evan
Right before going outside for the first time